Journal Articles
Journal Articles are organised with the most recent articles at the top.
Pandemic treaty should include provisions for palliative care
(Pettus et al., 2023)
Four international palliative care organizations to participated in the Intergovernmental Negotiating Body deliberations as relevant stakeholders after the COVID-19 pandemic. They prepared and distributed an advocacy note respectfully suggesting where treaty negotiators could include the words palliative care in the new treaty before the next pandemic breaks out.
The value of alleviating suffering and dignifying death in war and humanitarian crises
(Rosa et al., 2022)
This article explores the alleviation of suffering in humanitarian crises, specifically discussing armed conflict. This article advocates for greater value placed upon death, dying, and suffering.
International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS
(Benini et al., 2022)
This article highlights a redefined set of standards for pediatric palliative care (PPC). This international group of experts in PPC has revised the standards in PPC through the GO-PPaCS project.
A case analysis of partnered research on palliative care for refugees in Jordan and Rwanda
(de Laat et al., 2021)
This study explores various challenges encountered when conducting a research study on palliative care in humanitarian settings. Specifically, it highlights the ethical and moral dimensions of partnership in global health research.
Evaluation of the FICA Tool for Spiritual Assessment
(Borneman et al., 2021)
This study explores the feasibility of the Faith, Importance and Influence, Community, and Address (FICA) spiritual history tool in the context of palliative care.
Compounded trauma: A qualitative study of the challenges for refugees living with advanced cancer
(Guo et al., 2021)
This study investigates the impact of fractured families and networks on social support in advanced cancer, and the compounding trauma of the disease for refugees.
Link: https://pubmed.ncbi.nlm.nih.gov/33765877/
Changing Mortality and Place of Death in Response to Refugee Influx: A Population-Based Cross-Sectional Study in Jordan, 2005-2016
(Guo et al., 2021)
This investigation explores the rate and place of death among refugees in Jordan. Moreover, it advocates for palliative care to move beyond cancer and meet population-specific needs.
A Comprehensive Approach to Palliative Care during the Coronavirus Pandemic
(Blinderman et al., 2021)
This article discusses the challenges and lessons learned associated with palliative care during the COVID-19 pandemic, putting forth recommendations for future crises.
A Beacon for Dark Times: Palliative Care Support During the Coronavirus Pandemic
(Ankuda et al., 2020)
This commentary explores an innovative telephone support line to meet the palliative care needs of both healthcare workers and patients during the COVID-19 pandemic
Illness-related suffering and need for palliative care in Rohingya refugees and caregivers in Bangladesh: A cross-sectional study
(Doherty et al., 2020)
This study explores illness-related suffering and palliative care in Rohingya refugees and caregivers in Bangladesh.
Addressing obstacles to the inclusion of palliative care in humanitarian health projects: a qualitative study of humanitarian health professionals’ and policy makers’ perceptions
(Hunt et al., 2020)
This qualitative study explores humanitarian policymakers and health care professionals’ experiences and perceptions of palliative care during humanitarian crises.
Palliative Care Advocacy: Why Does It Matter?
(Pettus & de Lima, 2020)
This article summarizes an advocacy course on the subject of palliative care for IAHPC members. It also explores the intersection between the topics of palliative care and advocacy at a broader level.
Cancer in Syrian refugees in Jordan and Lebanon between 2015 and 2017
(Spiegel et al., 2020)
This policy review advocates for a comprehensive approach to addressing humanitarian crises, including education, screening, treatment, and palliative care for refugees and nationals in Jordan.
International-domestic linkages in a developing-country context: the case of the Rohingyas in Bangladesh
(Roy Chowdhury, 2019)
The paper analyzes Bangladesh’s policy advisory system, including the relationship between domestic and external systems and the role of international organizations in shaping national policy.
Cultural, Psychological, and Spiritual Dimensions of Palliative Care in Humanitarian Crises
(Clark et al., 2019)
This chapter explores the psychological, sociocultural, and spiritual aspects of palliative care in humanitarian settings. This article highlights the importance of contextual differences.
How to talk with dying patients and their families after disasters and humanitarian crises: a review of available tools and guides for disaster responders
(Daubman et al., 2019)
This review article explores the communication and palliative care skills for workers in crises situations, and puts forth a various tools and guidelines to be used by disaster and humanitarian workers.
Death, Dying, and End-of-Life Experiences Among Refugees: A Scoping Review
(Madi et al., 2018)
This review scoping explores the global literature on death, dying, and end-of-life experiences among refugees in order to highlight gaps in research and areas for future inquiry.
The role of palliative care in addressing the health needs of Syrian refugees in Jordan
(Pinheiro & Jaff, 2018)
This study focused on identifying the need for palliative care for life-limiting conditions among Syrian refugees in Jordan. It highlighted that while there is a great need, these services are currently unavailable or inaccessible.
Moral experiences of humanitarian health professionals caring for patients who are dying or likely to die in a humanitarian crisis
(Hunt et al., 2018)
This research article explores the experiences responding to patients who have a life limiting condition, in relation to the values of health professionals. This article highlights a need for palliative care in humanitarian settings.
Palliative care in humanitarian crises: a review of the literature
(Nouvet et al., 2018)
This article discusses the findings from a systematic review on palliative care in humanitarian crises. It explores the varying needs, barriers, from a variety of contexts.
Evidence-based guidelines for supportive care of patients with Ebola virus disease
This article provides guidelines for the delivery of supportive care to patients admitted to Ebola treatment units during a future outbreak using the Grading of Recommendations Assessment, Development, and Evaluation (GRADE) methodology.
Palliative care in humanitarian crises: always something to offer
(Powell et al., 2017)
This article highlights the importance of palliative care in humanitarian settings. It advocates for a holistic approach to palliative care as an essential component of crises relief strategies.
State of the Science of Spirituality and Palliative Care Research Part I: Definitions, Measurement, and Outcomes
(Steinhauser et al., 2017)
This article explores the concept of spirituality, as well as its relationship to palliative care and research.
State of the Science of Spirituality and Palliative Care Research Part II: Screening, Assessment, and Interventions
(Balboni et al., 2017)
This article explores the intersection between spirituality and palliative care. It reflects on the competencies, training, education, and clinician outcomes associated with spirituality and palliative care.
Palliative Health Care in Jordan for Syrian Refugees
(McDonald, 2017)
This document investigates the elements that impact the availability and accessibility of palliative care in humanitarian emergencies. It specifically focusses on Syrian refugees.
Palliative care and human rights in patient care: an Armenia case study
(Barros de Luca et al., 2017)
This paper explores the framework of human rights in patient care, which clarifies state obligations and addresses the rights of both patients and providers.
Palliative care in complex humanitarian crisis responses
(Marston et al., 2015)
This article discusses the formation of PallCHASE. With a focus on generating awareness and improving the quality of life of those with palliative care needs, the network aims to work closely with response agencies.
Improving maternal, newborn and women’s reproductive health in crisis settings
(Chi et al., 2015)
This article aims to identify and evaluate interventions for maternal, newborn, and women’s reproductive health in humanitarian settings.
Advancing palliative care as a human right
(Gwyther et al., 2009)
This review explores advocacy efforts and practical strategies for palliative care to use within a human rights framework to advance palliative care development worldwide.
The need for palliative care in Rwandan refugee camps
(Monette et al., n.d.)
The study aimed to demonstrate the importance of directing resources toward providing humanitarian palliative care in refugee camps in Rwanda.